I’m sitting in the waiting room of the Royal ENT clinic in Euston, London. I look down at the wad of cotton wool in my shirt pocket, all my pockets have cotton wool in them. I feel the trickle down my cheek but I’m used to it since it’s been 6 months. Routine, I unplug the wad from my ears, thread a couple of new plugs from the fresh lump of cotton wool in my top pocket, roll them into the shape of bullets and twist them into my ears. I use another lump to wipe the clear viscous fluid running down the side of my face.
I’ve been on anti-biotics for 6 months but with all the shit that’s been through my body I’m not expecting anything to work. I have been clean for a few months now and I still wake up in cold sweats, angels and horses in all their giant white glory adorn my dreams, thank God there’s someone next to me, Christ I wouldn’t want to be alone.
It’s my turn as I hear my name called out. There are hundreds of people sitting around waiting and it’s like watching the dead, they move slowly, droning, automated actions like residue nerves twitching out of habit but on the way out. I don’t consider myself part of this grainy black and white scene.
The doctor does his speedy check, 10 minutes per patient and then tells me I have Cholesteatoma in both ears and I’ll need an operation to rebuild the wee bones, put my cochlear back together. He tells me I’ll be deaf in 6 months. I can tell he does this all day as he rattles the prognosis off like a chef at the passé –
‘Table for one, check on let’s go, Cholesteatoma both ears, make that shiny and don’t forget the flaky mass, deaf in 6 months, where’s the sauce, extra sauce, down the side, c’mon let’s go, move it move it, pearl tumour on table one…’
Before I leave he asks me if I’ve ever experienced any other weird symptoms.
Sandton City, Johannesburg.
The working day is over, if you could call it that. I am making my way out to meet Tommy, Barbara’s brother who is going to give me a ride back to Pretoria. Down one set of escalators and I’m thinking this mall is like the seven levels of hell. Murderer’s, paedo’s and adulterers sentenced to an eternity of shopping and listening to bored Jewish housewives bang on about their lives, gold and black walk hand in hand, tacky, cheap and nasty… money doesn’t guarantee taste, that’s for sure, you may be able to buy happiness (there’s nothing romantic about poverty, let’s face it) but you can’t buy a sense of quality or taste.
I have spent the day demonstrating virtual reality machines in a toyshop. I’ve had the headset on all day, I see the skeleton on the draw-bridge, I swing, knock the sword out of his hand and chop him off at the knees as he falls into the fiery pit below. Die mother-fucker die.
Walking past the tasteless fountain my world goes numb, woozy and I stumble. I take a seat on the edge of the fountain, trying to figure out what’s happening. It’s my hearing, thick and muffled. The virtual reality machines must be a health hazard interfering with the brain waves, confusing signals and frying synapses. I wonder if it’s got something to do with depleted seratonin levels, all the coke and mdma we’ve been taking recently.
Things are getting louder, hang on, this is not normal. I see their faces, their jaws moving, soundless, like skeleton’s and if I had my sword I’d be swinging and chopping, fighting my way out this challenging level of hell. I hear the swooshing of the fountain and I feel heady, intoxicated, poisoned and sitting on the edge of the fountain I begin to tumble, fall, the lights streaking past me, my shutter speed delayed, aw Christ I’m going to throw up, louder still, whooshing and someone moves a chair, it’s not supposed to be that loud. God’s got his favourite twisted track on and he’s cranking the volume. He’s like the wizard with the frequency modulator and it’s all inverted like a photographic negative, negative sound. White noise turns black, plink and it all goes numb, crouched into my knees on the edge of the fountain, my hands over my ears, my world a gyroscope I imagine falling over backwards, slow, slow tumble, roll the ten inch pond becomes an ocean and my ears fill up, my vision blurred but the light pierces the surface and refracts, God reaching out extending a mocking hand, tweaking my senses, sending me through the sampler, I digitise, convert to machine code, break into bytes then bits, ones and zero’s falling off of me and I fall through the last flip-flop logic gate of life then darkness, total darkness.
‘You’ll need an MRI scan immediately’ Dr Farrell tells me.
On my way out I am handed a reminder with a date on it, a few days away – Royal Free Hospital, magnetic imaging department.
I take the day off work and take the number 46 bus up to Hampstead. The hospital is as big as the Millennium Falcon. I get to the Magnetic Imaging department and it’s all pretty modern. The equipment would have to be but the rest of it all looks slick and clean as well. They tell me to get undressed and it’s cold to the bone and I can't stop shivering.
The friendly nurse talks me through it…
‘Keep still, especially your head, stay calm, it’s a thin tunnel, hope you’re not claustrophobic, here are ear plugs, It’s quite a noisy machine, there’s a periscope so you can see out and there’s a speaker and a microphone so you can hear when we speak to you, or you can call for help.’
She fills a huge syringe with a milky liquid and I ask her what it’s for. ‘ A dye’ she tells me, helps them identify things. She sends the fluid up my veins and positions my head in the grip, reminds me not to move. She leaves the room and I can see them behind the glass shield. Why do they have to be so far away, behind all that bullet-proof glass? Is there something should know?
The bed clicks and I start moving backwards into the tunnel. There is something about tunnels, we came out through one and seemingly we head towards the light through one, at various points in our lives, like now, we pass through them, they see through us. 45 minutes and my neck feels broken, I avoid the panic and the urge to vomit. The scanner is like being inside an articulated truck engine and I can’t help but think that a magnetic field that strong must have some effect on the body and brain. Why else would they be behind the glass shield?
I leave the hospital and walk down to the cinema near the heath. Saving Private Ryan is showing, I buy my ticket and take my seat. I weep for humanity, life, death, love and for the sorry state I am in.
A few days later I am back in the Royal ENT clinic, Euston. The chirpy Irish doctor, Dr Farrell called me in, said it was important. He’s got the scan images in front of him and he gives me the good-news-bad-news option. I tell him give me the good news first. It turns out I won’t be needing the operation on my mastoid, it seems the Cholesteatoma has miraculously shrivelled up and blown away.
The bad news is that I have what he calls a nodule on my brain. Gives it a fancy name, Acoustic Neuroma.
‘A nodule?’ I ask – knowing by this stage what he means. I know what the answer is going to be. I watch him squirm, the guy who so confidently rattled off the order for one Cholesteatoma with extra sauce.
‘You mean a tumour?’
‘Yes, and we’ll need to operate as soon as possible’




